Dwarfism, a rare condition that affects approximately 1 in 15,000 to 1 in 40,000 individuals, is often met with discrimination and indifference from society. Despite the challenges, an increasing number of individuals with dwarfism are sharing their personal stories, standing up against prejudice, and proving that they are more than their condition.

Meet Charli and Cullen

Charli, an Australian woman living with achondroplasia – the most common form of dwarfism – and Cullen, who has achromic dysplasia, a condition affecting his physical growth, married in 2012. From the very beginning, they shared the dream of starting a family together, but their journey was not without concerns. Both recognized the challenges Charli might face during pregnancy and the possibility of passing on their physical conditions to their children. After years of doubt and uncertainty, Charli defied the odds and became pregnant in 2015.

Facing the Medical Challenges

When Charli found out she was pregnant, doctors expressed concerns, citing a 25% chance that their child would have a typical height, and an equal chance that the child might not survive. They further explained that if they chose to have children, there was a possibility the child could inherit both types of dwarfism, which could result in fatal consequences. To ensure the best possible outcome, the couple underwent genetic testing early in the pregnancy.

The results were encouraging. Their daughter, Tilba, was diagnosed with achondroplasia, just like Charli’s mother and brother (while her father had a typical height). Doctors warned of possible spinal complications but reassured the couple that she would live a healthy life overall.

Becoming an Internet Sensation

After Tilba’s birth, Charli and Cullen decided to document their journey on Instagram, sharing both their triumphs and struggles. Their account quickly became a platform to challenge the stigma surrounding dwarfism. Tilba, a joyful and vibrant girl, captivated everyone she met, but the couple worked tirelessly to protect her from potential teasing.

Despite encountering negativity online, they continue to post daily snapshots of their lives—whether it’s enjoying beach outings, family lunches, workouts, or celebrating Tilba’s milestones. Their posts aim to show the world that they are just like any other family, leading a fulfilling and happy life despite their condition.

Expanding Their Family

In 2018, Charli found herself pregnant again, and their second child inherited the condition from Cullen. In 2020, they welcomed their third child, a boy who did not inherit their condition and was born with average height.

However, Charli’s third pregnancy wasn’t without challenges. She experienced discomfort, nausea, and fainting spells, and underwent painful genetic testing. The process included a procedure with a significant risk of miscarriage but was necessary to assess the genetic makeup of their unborn child.

Living Life to the Fullest

Now with their family complete, Charli and Cullen continue to embrace life to its fullest. Through their Instagram account, they share the joy and humor of their daily lives, including moments that highlight their height differences in a lighthearted way, such as oversized clothes or minor complications in everyday activities.

Despite occasional hostile comments, Charli has learned to rise above the negativity, recognizing that most of their followers are supportive and admiring. Over the past year, their following has grown significantly, reflecting a growing interest in their story and the positive message they share.

In a world where the struggles of living with dwarfism are often overlooked, Charli and Cullen’s journey serves as an inspiring testament to resilience, love, and the power of sharing one’s story. Through candid posts and their unwavering determination, they continue to challenge stereotypes, promote acceptance, and inspire others to live life to the fullest, creating a more inclusive and compassionate society.